Epidermolysis Bullosa

Imagine if....

The touch of clothing tears off your skin

Your feet blister under your own weight

A tiny of hair in your eye makes it swell and blister

Your throat rips and scars when you eat normal food

It takes 3hours of everyday of your life to treat and dress your wounds

About Epidermolysis Bullosa (EB)

Epidermolysis bullosa (EB) is a rare genetic skin disorder which causes the skin to blister and shear even with the slightest of touch. Sometimes the skin even blisters spontaneously. The condition affects over 500,000 individuals worldwide. Every 1 in 17,000 babies born will be affected by EB. Children with EB are termed "butterfly children" because their skin is as fragile as that of a butterfly's wings.

There is estimated to be 500 families with EB in Malaysia. Out of this number, 5% suffer from a moderate to severe form of the disease. This particular group desperately needs continuous medical and psychological support.

If you wish to get in touch with us for future activities, getting help for EB patients or even making a donation, please do not hesitate to contact us.

Main office
DEBRA Malaysia
Persatuan Kebajikan Epidermolysis Malaysia
D-5-1, 7th Floor, Block D, Menara Uncang Emas,
Jalan Loke Yew,
55200 Kuala Lumpur,
Malaysia

Telephone number: +6012-3913328

Email: debramalaysia@gmail.com