Wednesday 18 October 2017

We are featured in The Star!!

We are so grateful to have The Star do a coverage on Epidermolysis Bullosa. And who better to talk about this other than Dr Sabeera Begum, Consultant Pediatric Dermatologist, Institute of Paediatrics, Hospital Kuala Lumpur. Dr Sabeera has cared for numerous EB patients and she is very familiar with the issues and challenges these patients go through. This definitely helps in spreading awareness amongst the public regarding the existence of this rare, but potentially debilitating condition.

Read all about what Dr Sabeera Begum have to say about Epidermolysis Bullosa (EB) here:

The Star coverage - A very rare disease

Also, one family talks about what is it like taking care of an EB child

Her Butterfly Child

It's World Epidermolysis Bullosa Day!

It's Word Epidermolysis Bullosa Week and to celebrate this, we've put together a video montage of the efforts that has been put in s...