We are so grateful to have The Star do a coverage on Epidermolysis Bullosa. And who better to talk about this other than Dr Sabeera Begum, Consultant Pediatric Dermatologist, Institute of Paediatrics, Hospital Kuala Lumpur. Dr Sabeera has cared for numerous EB patients and she is very familiar with the issues and challenges these patients go through. This definitely helps in spreading awareness amongst the public regarding the existence of this rare, but potentially debilitating condition.
Read all about what Dr Sabeera Begum have to say about Epidermolysis Bullosa (EB) here:
The Star coverage - A very rare disease
Also, one family talks about what is it like taking care of an EB child
Her Butterfly Child
Subscribe to:
Post Comments (Atom)
-
EB is a lifelong disease with no definitive treatment or cure at present, despite intensive ongoing research. The EB spectrum can vary fr... -
Imagine if.... The touch of clothing tears off your skin Your feet blister under your own weight A tiny of hair in your eye makes it ... -
The Epidermolysis Bullosa (EB) Workshop DATE : 14th and 15th September 2017 VENUE : Auditorium Paediatric, Hospital Kuala Lumpur ...
No comments:
Post a Comment